PHARE Mayotte

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Transforming the lives of people affected by the world’s most common inherited blood disorder is within our reach.

Context

During Cyclone Chido, continuity of care for people with sickle cell disease in Mayotte was at risk.

With the support of Siclopédie:

  • a medical hotline was set up;
  • remote specialist consultation was activated between Mayotte, Réunion and mainland France;
  • the paediatric cohort was secured within three weeks.

This experience showed that the infrastructure can maintain safe follow-up even during a natural disaster.

 

The aim

The PHARE project builds on this work by:

  • establishing sustainable regional care pathways;
  • strengthening coordination;
  • reducing disparities between the French overseas territories and mainland France;
  • creating a model that can be reproduced in other remote territories.

Mayotte will serve as a pilot area for this new model of care.

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Support us to give them a better future

Every donation funds direct action on the ground: equipping a screening centre, training a doctor or developing information tools for patients. Sickle cell disease affects millions of people but remains severely underfunded. Your support changes lives.

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Our projects

We run practical programmes to support earlier diagnosis, better care and wider access to information. Our projects cover research, prevention, therapeutic patient education and access to healthcare in the regions most affected by sickle cell disease.

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Our partners

RED is supported by a strong network of institutional, scientific and community partners. Within the RÊVE consortium and beyond, we combine our strengths to accelerate research and improve care wherever sickle cell disease occurs.