The Association

DISCOVER A GLOBAL NETWORK SPANNING THREE CONTINENTS

Founded in 2022, RED brings together doctors, researchers, patient organisations and people working in the field. The network is active in France, Senegal, the Democratic Republic of the Congo, Burkina Faso, Mali, Côte d’Ivoire, Togo, Benin, Guinea Conakry, Cameroon, Madagascar and Canada. Its work focuses on care, research and training.

Support RED

Transforming patients’ lives. RED’s patrons help make this vision a reality.

Become a patron

Organization

RED is organised into three branches: RED France, RED Africa and RED Canada, each with its own executive committee.

The members of each executive committee are elected by their Board of Directors for a five-year term, in accordance with the association’s articles of association.

The three executive committees then form the RED Global Executive Committee, which is responsible for defining the network’s strategic direction, coordinating international activities and fostering collaboration between the various delegations.

RED France Executive Committee

President: Pablo Bartolucci
Vice-President: Corinne Guitton
Vice-President: Maryse Etienne Julan
Treasurer: Sylvain Le Jeune
Secretary: Charlotte Pougary
Co-Secretary: Anne-Laure Pham Hung d’Alexandry d’Orengiani

RED Canada Executive Committee

President: Stéphanie Forté
Vice-President: Thomas Pincez
Treasurer: Yves Pastore

RED Africa Executive Committee

President: Saliou Diop
Vice-President: Léon Tshilolo
Treasurer: Eléonore Kafando
Secretary: Tite Mikobi

RED Global Executive Committee

President: Pablo Bartolucci
Vice-President: Stéphanie Forté
Vice-President: Tite Mikobi
Treasurer: Sylvain Le Jeune
Secretary: Charlotte Pougary

Qu'avez-vous pensé de cette page ?

Note moyenne 0 / 5. Nombre de notes : 0

Pas encore de note, notez en premier !

separateur red drepanocytose faire un don

Support us to give them a better future

Every donation funds direct action on the ground: equipping a screening centre, training a doctor or developing information tools for patients. Sickle cell disease affects millions of people but remains severely underfunded. Your support changes lives.

Donate

Our projects

We run practical programmes to support earlier diagnosis, better care and wider access to information. Our projects cover research, prevention, therapeutic patient education and access to healthcare in the regions most affected by sickle cell disease.

View all projects

SCDiag

A simple, rapid and accessible approach to screening children for sickle cell disease at an early stage.

PRESEV 1 & PRESEV 2

Developing and validating a predictive score for acute chest syndrome.

PHARE Mayotte

Maintaining safe care for people with sickle cell disease, especially children, despite difficult living conditions.

MORPHEO

Understanding why patients respond differently to morphine, so treatment can be tailored to each person.

Hydroxyurea and pregnancy

A clinical study of hydroxyurea use during pregnancy.

PRESTA study

Improving care for people with sickle cell disease from the moment they arrive at the emergency department.

Drépagarde

Emergency childcare support to make hospital admission easier for single parents living with sickle cell disease.

separateur red drepanocytose faire un don parrain

Our partners

RED is supported by a strong network of institutional, scientific and community partners. Within the RÊVE consortium and beyond, we combine our strengths to accelerate research and improve care wherever sickle cell disease occurs.